Personality Cafe banner

1 - 2 of 2 Posts

·
Registered
Joined
·
147 Posts
Discussion Starter #1
Hi, my daughter has cystic fibrosis. She's in hospital at the moment with a chest infection. They started her on iv's two weeks ago, and after a week there was no improvement and her lung function went down a little. So they changed the antibiotics and started her on an antifungal oral med also. She seems to be improving slowly but surely.

The doctors take a sputum sample regularly and say they can't say for certain which bug is actually causing the infection, that there are a few showing up and that they try different antibiotics to see which ones will work.

I'm wondering, is there a better way of figuring out which antibiotic/antifungal to give her? A faster way? Since every infection she gets causes scaring on her lungs and will ultimately cut her life short. She got a chest infection last october, that lasted until february. I did home iv's, for those 4 months. It was a hell of an ordeal. The antibiotics weren't working. We did hours and hours of physio every day, but it made no difference.

Then in february, I noticed there was a small amount of mould around the windowsill in my bedroom. I googled it and found that this could cause a lung infection. So I said it to the doctors and they tried her on an antifungal. Within a week, her chest cleared up. Although it is obvious the antifungal is what did the trick, the doctor didn't seem to make the connection. I mentioned it last week, to maybe try her on an antifungal again, and the doctor said "you felt that worked last time did you?" Well no doctor! Wishy washy feelings don't come into it. LOGICALLY that is what worked, since she had an infection for 4 months and the minute she went on an antifungal the infection was gone. DUH!!!

I don't have a lot of faith in this doctor, or the health system in general. I feel we are very behind the times here. Do any of you clever intj's know of a better way to find out which bug is causing her infection? The quicker it's identified and treated, the better.

I thought about getting my own microscope and doing my own research, but I seriously wouldn't even know where to begin.
 

·
Registered
Joined
·
705 Posts
Im not sure that being an intj qualifies someone for medical advice

with that said, I would take her to a new doctor or a specialist though (most likely the latter)

good luck , i hope her health improves
 
1 - 2 of 2 Posts
Top